Hope Springs Eternal and the Beat Goes On--La de da de de,la de da de da

Recently I became aware of an option wherein newly diagnosed PCa patients as a matter of routine can have their cases reviewed by a Multidisciplinary Review Board (MdRB). This service is provided by a large, well known hospital located here in mid Michigan--one I am familiar with because (1) I  consulted one of their oncologists in my search to replace Dr. "Snuffy" Myers upon his retirement and (2) I underwent radiation at this facility for my gynecomestia.

In my ongoing quest to determine what to do when Xtandi is no longer effective, I thought perhaps such a review would help me to choose among the options I have under consideration and provide me with one or more solutions that have thus far escaped my attention. It also occurred to me that one or more of the MdRB members may be aware of a clinical trial well suited to my PCa dilemma.

I contacted the nurse coordinator of the MdRB to determine if a review of my case could be arranged. Shortly thereafter much to my pleasant surprise she advised me by phone that a multidisciplinary review could be arranged.

A week or so later without further contact I received a phone call from the nurse coordinator who informed me the MdRB had met and determined :

--My best choice when Xtandi fails would be  Lupron

--No clinical trials were currently offered by their facility that suit my diagnosis and PCa circumstances.

While the MdRB review provides valuable feedback for which I am most grateful, I expected a more comprehensive report; I expected and would have appreciated an opportunity to appear before the board to discuss some of the more attractive alternatives I have considered in the recent past. As one example it would have been helpful to hear what the board thought about H D Brachytherapy for me and my circumstances. Had I been given an opportunity to appear before the board I would have advised them of my long term deep-seated aversion to Lupron. I had also hoped one or more board members would be knowledgeable about clinical trials on a much broader scale than only those offered by their facility.

Stay tuned.
*Google the title "The Beat Goes On", a 1967 Billboard Hot 100 Top 10 Hit, and listen to the lyrics by Sonny and Cher.